SUPPORT LINE

0300 111 1234

Message

EU e-Privacy Directive

This website uses cookies to manage authentication, navigation, and other functions. By using our website, you agree that we can place these types of cookies on your device.

View e-Privacy Directive Documents

You have declined cookies. This decision can be reversed.

Living with ADPKD

Treatments for ADPKD

User Rating: 5 / 5

Star ActiveStar ActiveStar ActiveStar ActiveStar Active

Find out about different medications that can help manage your symptoms of ADPKD (autosomal dominant polycystic kidney disease), slow its progression and reduce your risk of complications.

Continue Reading

PrintEmail

ADPKD and Pregnancy

User Rating: 4 / 5

Star ActiveStar ActiveStar ActiveStar ActiveStar Inactive

This information is about pregnancy in women with autosomal dominant polycystic kidney disease (ADPKD). It is intended as a general guide for women and their partners about planning for pregnancy, what to expect during pregnancy, and what to do if you are already pregnant.

Continue Reading

PrintEmail

Diet and Lifestyle

User Rating: 4 / 5

Star ActiveStar ActiveStar ActiveStar ActiveStar Inactive

No specific diet or lifestyle measures have been shown to prevent cysts developing in people with ADPKD. However, a healthy lifestyle may help to protect your kidney function and reduce your blood pressure and risk of cardiovascular problems, such as stroke. Keeping your blood pressure down is especially important, as high blood pressure can damage your kidneys if you have ADPKD.

Continue Reading

PrintEmail

Coping

User Rating: 4 / 5

Star ActiveStar ActiveStar ActiveStar ActiveStar Inactive

Living with chronic kidney disease can be overwhelming, but life can seem especially challenging if you have ADPKD. You may well have seen how the disease has affected your relatives and worry that your own kidney function may slowly get worse or about your children’s future.

Continue Reading

PrintEmail

Talking to children and young people about ADPKD

User Rating: 3 / 5

Star ActiveStar ActiveStar ActiveStar InactiveStar Inactive

This article is a general guide for parents or carers of children and young people (up to age 18) who are at risk of, or have been diagnosed with autosomal dominant polycystic kidney disease (ADPKD). It contains advice and tips to help you explain ADPKD to children and young people.

Continue Reading

PrintEmail

Medicines to Avoid

User Rating: 3 / 5

Star ActiveStar ActiveStar ActiveStar InactiveStar Inactive

Many medicines are wholly or in part removed from the body by the kidneys. So it makes sense for everyone with ADPKD to avoid any medicines that could harm the kidneys or make other treatments less effective. This applies not only to medicines prescribed by a doctor or in hospital, but also to remedies you buy over the counter from the pharmacist or supermarket. 

Continue Reading

PrintEmail

Latest Tweets

PKD Charity is a Member of

  • Fundraising Regulator Website
  • Visit The Information Standard website
  • Visit PKD International website
  • Visit Ciliopathy Alliance website
  • Visit the Genetic Alliance UK website
  • Rare Disease UK Website
  • National Voices Website
  • Specialised Healthcare Alliance Website
  • FEDERG Website
  • Visit EURORDIS website